Hope for Hypothalamic Hamartomas | hopeforhh.org - Hope for Hypothalamic Hamartomas (Hope For HH) seeks to provide information and support to hypothalamic hamartoma patients, caregivers, and healthcare providers and to promote research toward early detection, improved treatments, living with HH, and cure.

  • http://www.hopeforhh.org/donate-5/ Donate | Hope for Hypothalamic Hamartomas - As a nonprofit, volunteer run organization, we rely on your donations to provide emotional, educational, and support services free of charge to patients, caregivers and health care providers.
  • http://www.hopeforhh.org/what-is-hh/ What is HH? | What is Hypothalamic Hamartoma? | Hope for Hypothalamic Hamartomas - While the exact number of Hypothalamic Hamartomas cases worldwide is not known, HH is estimated to occur at the rate of 1 in 200,000 children and teenagers worldwide. This number may be understated due to the fact that the process of diagnosing HH is complex and often not well understood.
  • http://www.hopeforhh.org/about-hhh/ About Hope For HH | Our Mission | Hope for Hypothalamic Hamartomas - Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas.
  • http://www.hopeforhh.org/partners-2/ Partners | About Hope For Hypothalamic Hamartomas | Hope for Hypothalamic Hamartomas - Hope for HH has formed strategic partnerships with leaders in epilepsy including government agencies, professional societies and disease based advocacy organizations.
  • http://www.hopeforhh.org/research/ Research | News & Research | Hope for Hypothalamic Hamartomas - We are grateful to the publishers who have generously provided permission to link to many full articles pertaining to hypothalamic hamartomas.
  • http://www.hopeforhh.org/podcasts/ Podcasts | News & Research | Hope for Hypothalamic Hamartomas - Research articles providing an general overview of hypothalamic hamartomas and their impact.
  • http://www.hopeforhh.org/resources/ Resources | News & Research | Hope for Hypothalamic Hamartomas - A list of links to other online resources to help family members and caregivers find additional support
  • http://www.hopeforhh.org/get-involved-2/ Volunteer, Raise Awareness, Donate | Get Involved | Hope for Hypothalamic Hamartomas - Hope for HH was founded by a small group of dedicated parents who wanted to make sure other families touched by HH would benefit from the lessons many of us learned the hard way. There is no professional staff and the organization and website are maintained by volunteers.
  • http://www.hopeforhh.org/newsletter-archive/ Newsletter Archives | News & Research | Hope for Hypothalamic Hamartomas - Recent and past news stories on hypothalamic hamartomas and it's symptoms
  • http://www.hopeforhh.org/support-for-families-and-patients/hopeforhhmap-1/ Put Hope for HH on the MAP! - Hope for Hypothalamic Harmartomas - Put Hope for HH on the MAP! Download the Hope for HH flyer and take a photograph at home and during holiday travels. Let’s see how many places our community spans around the world.

    Country: 160.153.49.96, North America, US

    City: -111.8906 Arizona, United States

  • Lori - Great read!!

    Loved, loved, loved this book. What a loving and dedicated family. They are truly an inspiration to everyone to follow your dreams. I especially love when she explains how to be yourself and not always go with the trends....just be yourself that's what matters. I've always loved watching their show and this book was such a great story and insight to the family.

  • millerwatch - good warmer once you get it going

    ok, here's the skinny. First follow the directions, I read the instructions and followed em to a "T"; and I had problems getting the thing to light the first 3 times. Then I remembered a line of the instructions for when your done using but it still has fuel and is still going. I did the same thing after filling, set it on a flame proof surface flat before lighting. It takes about three minutes for the fumes of the lighter fluid to collect in the element, but it does. And forget letting it burn for 5 seconds, do ten seconds before placing the top of the hand warmer back on. If it doesn't stay lit, repeat. I had one of these hand warmers bout 20 years ago when I lived in Michigan & I don't recall it being made in china, nor do I recall having a difficult time getting it lit. Overall I'm happy with my purchase but I have two beefs with the product. First it uses way to much fluid and second its made in china, not the u.s. like zippos lighters.

  • History Girl - Its okay, but..

    I found this book to be okay, but more helpful is "Eat to Live." This book gives good info, but again, the "Eat to Live" book is far more informative and contains much more practical information for your health and the way to eat.

  • Micky Morgan - H & R Block At Home

    Use it every year without any problems. Love this program, for ease of use. This download is much easier than going to any store and having to buy it.

  • Robert - Drink

    Not too impressed with item. For tea it is a little bit too pricey and effects are very nminimal but still easy to use