LAL Solace Patient Community - LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support - LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.

  • http://www.lalsolace.org/profiles/members/ Members - LAL Solace Patient Community - All Members | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/page/lal-info LAL D Info - LAL Solace Patient Community - Lysosomal Acid Lipase Deficiency (LAL D):LAL D is an inherited (genetic) disorder which means that it is passed down within a family. It is autosomal recessiv…
  • http://www.lalsolace.org/page/getting-tested-for-lal-deficiency Selected LAL Deficiency Treatment Centers * - LAL Solace Patient Community -  USA California Lucile Packard Children's Hospital at StanfordDr. Greg EnnsPediatric Genetics730 Welch Rd 2APalo Alto, CA9…
  • http://www.lalsolace.org/page/6373865:Page:1110 LYSOSOMAL ACID LIPASE DEFICIENCY (LAL D) - LAL Solace Patient Community - Lysosomal Acid Lipase Deficiency (LAL D):LAL D is an inherited (genetic) disorder which means that it is passed down within a family.  It is autosoma…
  • http://www.lalsolace.org/page/regulatory-process Regulatory Process - LAL Solace Patient Community - RegulatoryProcess for the Approval of DrugsBefore any drug can beprescribed Regulatory agencies such as the US Food and DrugAdministration (FDA) and Europe…
  • http://www.lalsolace.org/page/getting-tested-1 Getting Tested - LAL Solace Patient Community - Getting TestedLAL D can be diagnosed using a simple blood test that measures the amount of the Lysosomal Acid Lipase (LAL) enzyme.  People that have…
  • http://www.lalsolace.org/page/clinical-trials Clinical Trials - LAL Solace Patient Community - Clinical TrialsSynageva BioPharma Corporation was bought by Alexion Pharmaceuticals, which continues to study sebelipase alfa under the commercial name Kanuma…
  • http://www.lalsolace.org/page/resources-1 Resources - LAL Solace Patient Community - NORD - http://www.rarediseases.orgThe National Organization for Rare Disorders (NORD), is a unique federation of voluntary health organizations dedicated to h…
  • http://www.lalsolace.org/forum Discussion Forum - LAL Solace Patient Community - Latest Activity - Forum Discussions | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Dis…
  • http://www.lalsolace.org/events Events - LAL Solace Patient Community - Upcoming Events | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/page/about-us About Us - LAL Solace Patient Community - The SOLACE organization (Support Organization for LAL Deficiency - Advocacy, Care and Expertise) was created to bring LAL Deficiency patients and families toge…
  • http://www.lalsolace.org/page/contact-1 Contact - LAL Solace Patient Community - To contact LAL Solace, email us at: [email protected] check this email every day so I can get back with you quickly. Also, you can send me (Mary Pruitt) a…
  • http://www.lalsolace.org/video Videos - LAL Solace Patient Community - All Videos | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/forum/topics/how-long-are-your-infusions#comments How long are your infusions? - LAL Solace Patient Community - My daughter will be starting her Kanuma infusions soon, and I was just wondering how long the infusions are that you or your children receive, and if you've ev…
  • http://www.lalsolace.org/profiles/blogs/rare-disease-day-getting-the-word-out Rare Disease Day...Getting the Word Out! - LAL Solace Patient Community - Next week, on February 29 it will be Rare Disease Day! A day to recognize those of us who have been touched by a rare disease. And with LAL Deficiency, we cert…
  • http://www.lalsolace.org/profiles/blogs/world-symposium-2012 WORLD Symposium 2012 - LAL Solace Patient Community - Two weeks ago, Stephanie Dykes, Dakota's mom and our Board's secretary, and I travelled to San Diego for the WORLD Symposium. This was a conference dedicated t…
  • http://www.lalsolace.org/profiles/blogs/new-to-lal-solace New to LAL Solace - LAL Solace Patient Community - All,We are the parents of a CESD patient. Our oldest daughter, Maureen, was diagnosed with CESD when she was 5 years old. She is now 14 and we are glad to hea…

    Country: 208.82.16.68, North America, US

    City: -122.1514 California, United States

  • wysecrone - HIDDEN

    This was a good story. I found it to be right up there with Allison Brennan, Lisa Jackson, Karen Rose & all the wonderful writers of this genre. A really good depiction of characters. My only criticism would be the lack of separation between switching scenes. Definitely looking forward to the next Bone Secrets. NOVEL.

  • Stephen Bernstein - Why pay the mark up?

    The capsules are $41.75 per month and the chewables are $44.50 on their website--why pay a mark-up for reselling?

  • obsidianprincess - PRETTY GOOD OVERALL

    IF YOU ALREADY START OUT WITH WHITE TEETH, THIS IS NOT GOING TO BE THE MIRACLE YOU ARE LOOKING FOR. BUT IF YOU HAVE SEMI STAINED TEETH, THIS WORKS. I HAVE NOTICED A DIFFERENCE, BUT IT IS NOT A HUGE DIFFERENCE YET, BUT I AM 3 TREATMENTS IN. THE 30 MINUTE LIGHT IS INCONVENIENT AT TIMES, SO I TRY TO DO IT WHILE LYING IN BED, READING A BOOK. THIS IS A NICE KIT, DO NOT GET ME WRONG, I JUST THINK PEOPLE HAVE HIGH EXPECTATIONS FOR A SUPER BRIGHT WHITE, AND THAT IS NOT GOING TO HAPPEN OVERNIGHT. THE SYRINGES HOLD 5 DAYS WORTH A PIECE, WHICH IS ENOUGH FOR A GOOD STATRT! THE INSTRUCTIONS ARE CLEAR AND THE MOUTHGUARD IS COMFORTABLE.

  • LifeIsJoy - Still here, going strong.

    I found many of the recipes excellent. The problems didn't start until I tried out some of the more advanced recipes for chicken. Sonia doesn't seem to care, or know how, to keep the chicken from drying out in the microwave. The chicken was often withered, hard, alone, and sad, so so so sad. I thought I could live with it at first, but after years, years and years, the dried out husk that, perhaps a lifetime ago, resembled a real chicken, a strong chicken, a MAN of a chicken, could no longer sustain a happy and joy-filled diet.

  • Olman - Great protection

    I finally broke down and bought a smart phone, though balked at the size in my pocket. ATT suggested I buy protective cover and tempered glass for the display. Well, I declined their offer and found this cover for less than half their price and this is every bit, if not better than the one they offered. The Crave case fits precisely and the buttons work easier than with out the case. All the cutouts are precisely cut and access is easy for the home button and camera. I highly recommend this for iPhone 5se. Don't hesitate, just buy it.

  • sealoft - Product Quality and Technical Support has deteriorated

    I will make this review short and to the point. If you are considering purchasing a Nest Thermostat please go to the NEST USER Community forums first.